Multiple Myeloma Research Foundation
nonprofit
Disease Research Norwalk, CT
4

We move obstacles, move faster, and extend lives. 

The Multiple Myeloma Research Foundation (MMRF) was established in 1998 as a 501(c)(3) non-profit organization by identical twin sisters Kathy Giusti and Karen Andrews soon after Kathy’s diagnosis of multiple myeloma. Kathy’s need was urgent. She was looking for a cure. Finding that the current system was not optimized for speed, she changed it.

The medical research model has long been built upon a system of competition for funding (grants) and accolades (publishing). This wasn't working well for Kathy Giusti. When she was diagnosed, no treatment had been developed for multiple myeloma in decades, and what was available wasn't very effective.

Kathy realized that the old model was a barrier to success, and encouraged individuals and companies to hoard their data and discoveries. She and her sister created the MMRF to replace this system with a new patient-centered model of collaboration.

Because our only motivation is to find a cure, we are unencumbered in our ability to identify the barriers to progress, develop models to overcome them, and help evolve the industry through technologies that foster collaboration and leverage the collective power of the entire community.

This powerful MMRF philosophy has been well-proven as the most efficient way to continually speed the development of more effective treatments for patients.

Our accomplishments include:

Establishing a multi-center tissue bank with more than 4,000 samples.
Spearheading an initiative to map the multiple myeloma genome with world-class leaders in genomics.
Creating the collaborative Multiple Myeloma Research Consortium (MMRC) of 21 world-renowned institutions.
Launching the groundbreaking CoMMpass℠ Study to collect and analyze multiple tissue samples from 1,000 patients over a multi-year course, so that patients will eventually be matched with the right clinical studies and treatments.
Building the CoMMunity Gateway, a platform to connect patients sharing sub-types of myeloma with each other and experts.
The results are impressive. Six drugs received FDA approval in the time it normally takes for one. More recently, we opened clinical trials for new drugs in three approved classes plus agents in many new classes.

As the world's number one private funder of multiple myeloma research, we have raised over $250 million since our inception. We direct nearly 90% of our total budget to research and related programming.

We are well-positioned to see new drug breakthroughs that will make a difference in patients' lives. And, in the process, we are changing the way cancer research is conducted.

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Connect with us!

$903 - Ongoing Support -

1/mo

Pledge for the Cure

You've heard the stats and now it's time to take a stand. As a thank you for your monthly gift, you'll receive a customized MMRF filter for your Facebook profile picture to show your friends and family you've taken then pledge and to help us spread the word!

5/mo

Show Your Support

Wear it loud, wear it proud. Your contribution means we're one step closer to the real deal. That's why we're sending you the real deal wristband as a thank you, along with the snazzy custom MMRF filter for your Facebook profile picture. Let the world know you're ready to find a cure!

10/mo

Connect with the Professionals

Navigating multiple myeloma alone can be nearly impossible. Your $10 a month helps us tremendously in running trials, and to show our appreciation, we'll connect you with the team behind them! You'll receive an invitation to an exclusive webinar for yourself or a loved one, along with an MMRF wristband, and the custom Facebook profile picture filter.

25/mo

Join the Team

If we know anything, it's that community is key. Because together, we will find a cure. Join the team and meet the multiple myeloma community up close at a patient summit breakfast. You'll also receive the exclusive webinar invite, the official MMRF wristband, and our custom Facebook filter to help build the community even more!

50/mo

The Answered Question

Our generosity doesn't just mean you support the MMRF. It means you are actively contributing to not only history but a better future for you, for your friends and family, and for generations to come. For every 100 donors at this level, we are one patient closer to answering the question: when will we finally have a cure? And as a thank you for your commitment to end that questioning, we're here to answer all of yours! Get a one-on-one call with an MMRF Senior Team Member for you or a patient or caretaker of your choice along with a patient summit breakfast with the team, the exclusive webinar invite, an official wristband, and a custom MMRF Facebook profile picture filter, to show your pledge to find a cure and encourage your friends to do the same!

Team • 4

James Grazick


James Crowell

Supporter

New York, NY

Logan Miller

Digital Marketing Manager


Brooke Roberts

Manager, Independent Events